DEBRA (Dystrophic Epidermolysis Bullosa Research Association) Australia is a not for profit volunteer based organisation that does not receive any direct Government funding.DEBRA Australia objectives are to:•Educate and support families living with Epidermolysis Bullosa (EB)•Investigate and implement programs to help EB sufferers to improve their care and quality of life•Offer financial and emotional support and also networking opportunities to families•Educate health professionals and the general public about EB•Raises awareness of this orphan disease•Raise vital money for Research to one day find a cure•Maintain DEBRA International membership to combine resources and networking opportunites